Friday, March 23, 2012

Devastated.

That is how we feel.  Jon and I had a meeting with Logan's pediatrician and the radiologist last night.  It was the worst case scenario.  Our poor little boy has over 10 tumors on his precious bones.  The one in his arm has stunted the growth of his arm bone and he will most likely require surgery soon for that one.  As the radiologist showed us all of these tumors, my eyes swelled with tears.  It is so difficult to know that your child has this crazy, rare genetic bone disease that will cause him pain, deform his bones, and require various surgeries.  We were referred to a specialist up at Miami Children's Hospital and we are hoping to get in today.  I want more information.  Keep our little Logie in your thoughts and prayers please.  He is the sweetest child and doesn't deserve any of this heartache.


The disease:  Hereditary multiple exostoses (HME) is a rare medical condition in which multiple bony spurs or lumps (also known as exostoses, or osteochondromas) develop on the bones of a child.

1 comment:

  1. So sorry to hear about your Logie. Our thoughts and prayers are with you and the family.

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